
Last month, the Ontario Institute for Cancer Research (OICR) launched the Ontario Hereditary Cancer Research Network (OHCRN) participant portal, a first-of-its-kind provincial registry designed to advance research and improve support for people at risk of hereditary cancers. Leanne Mercer, Genetic Counsellor at TBRHSC, attended the launch and spoke about its importance for patients in Northern Ontario.
The OHCRN registry brings genetic testing and health information from across Ontario into one centralized database. This resource will advance research aimed at improving early detection, diagnosis, and treatment of hereditary cancers, while also connecting participants to clinical trials, advocacy groups, and other supports.
In Leanne’s remarks, she noted that until now, patients outside of major city centres often had limited access to research opportunities and were unaware of studies based primarily in large Greater Toronto Area hospitals. “For the first time, patients across Ontario, no matter their postal code, level of health literacy, or socioeconomic background, can register their interest in research,” said Leanne.
The portal is open to any Ontarian who has completed genetic testing because of a personal or family history of cancer. Local registration will begin once Research Ethics Board approval is in place. For more information about the Ontario Hereditary Cancer Research Network registry, visit ohcrn.ca.






